tag:blogger.com,1999:blog-5034998384799920884.post9197197967574742478..comments2024-03-26T12:01:39.690-07:00Comments on A Family Tapestry: Chased Cross CountryJacqi Stevenshttp://www.blogger.com/profile/03471698670217119444noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-5034998384799920884.post-8450541918101629452013-05-30T20:41:39.896-07:002013-05-30T20:41:39.896-07:00I think it was harder on his family than on Sam, w...I think it was harder on his family than on Sam, when they became aware of the situation.<br /><br />There have been a number of medical advances now that are yielding a positive outcome for people with Marfan syndrome. There is a Marfan Foundation dedicated to seeking medical answers as well as serving as advocate for those with the condition. Even within a couple decades of Sam's passing, there were medical advances making a significant difference in health outcomes. And I'm sure there is more research being conducted. Marfan syndrome impacts a complex array of health systems, so answers don't come easily...Jacqi Stevenshttps://www.blogger.com/profile/03471698670217119444noreply@blogger.comtag:blogger.com,1999:blog-5034998384799920884.post-91953469154506771942013-05-30T20:36:21.517-07:002013-05-30T20:36:21.517-07:00And his life was really barely getting started.And his life was really barely getting started.Jacqi Stevenshttps://www.blogger.com/profile/03471698670217119444noreply@blogger.comtag:blogger.com,1999:blog-5034998384799920884.post-81781703885378779392013-05-30T20:34:06.992-07:002013-05-30T20:34:06.992-07:00You're right, Iggy, the worry would have been ...You're right, Iggy, the worry would have been awful. Plus having to make the decision to either get medical help far from home, or wait until the tour finally got back into town. No way this was going to be a good scenario.Jacqi Stevenshttps://www.blogger.com/profile/03471698670217119444noreply@blogger.comtag:blogger.com,1999:blog-5034998384799920884.post-28806810878463917562013-05-30T20:31:11.604-07:002013-05-30T20:31:11.604-07:00Yes, definitely. Funny how our perspective changes...Yes, definitely. Funny how <i>our</i> perspective changes things. When I first heard this story, I was much younger than Sam. That seemed so old.<br /><br />Now...seems so young. And it was.Jacqi Stevenshttps://www.blogger.com/profile/03471698670217119444noreply@blogger.comtag:blogger.com,1999:blog-5034998384799920884.post-16913293166171272672013-05-30T08:22:45.740-07:002013-05-30T08:22:45.740-07:00Oh, I 've been afraid this would happen. I did...Oh, I 've been afraid this would happen. I didn't realize that Sam had an elongated frame. I'm prepared to be almost relieved that the message didn't catch him until he had had his last Ice Follies hurrah . . . especially if there was nothing to be done. Is there anything doctors can do today for the Marfan syndrome?Mariannhttps://www.blogger.com/profile/09543003593158696611noreply@blogger.comtag:blogger.com,1999:blog-5034998384799920884.post-7700390145234099932013-05-30T05:05:43.409-07:002013-05-30T05:05:43.409-07:00So young:(So young:(Far Side of Fiftyhttps://www.blogger.com/profile/07995757632158408442noreply@blogger.comtag:blogger.com,1999:blog-5034998384799920884.post-43514345317888181262013-05-29T06:23:56.459-07:002013-05-29T06:23:56.459-07:00It might be just as well that the news didn't ...It might be just as well that the news didn't catch up to him - and allowed him to enjoy his "final tour" without worrying about "what the doctors found" - especially since they could do nothing to help.Intense Guyhttps://www.blogger.com/profile/08441598926026727682noreply@blogger.comtag:blogger.com,1999:blog-5034998384799920884.post-84739719807255079982013-05-29T03:52:38.244-07:002013-05-29T03:52:38.244-07:00Oh. Still a baby, really. Oh. Still a baby, really. Wendyhttps://www.blogger.com/profile/17863357756727783017noreply@blogger.com